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Marfan Syndrome Links

Marfan syndrome is a genetic disorder that affects the body’s connective tissue integrity including the vascular, optic, and muskoskeletal networks.  Connective tissues are responsible to hold the body’s cells, organs, skeletal and vascular framework together and also helps to control how the body grows and develops. 

Marfan Syndrome is a serious condition and some complications may be potentially life-threatening.  Although there is no cure for Marfan syndrome, advances in medical care are helping people live a normal lifespan.  Early and accurate diagnosis is very important, not only for people with Marfan syndrome but also for those with other connective tissue disorders. 

Marfan Society -

Marfan Research Foundation

Marfan Life Forum
read and share personal experiences living with Marfan Syndrome

Marfan Syndrome and Cardiac Complications -
Patient Power Info

Alterations of the Thoracic Spine in Marfan's Syndrome -
Daeubler et al. 186 (5): 1246 -- American Journal of Roentgenology

Genetics of Marfan Syndrome - EMedicine

American Heart Association - Journals
Long-term Survival and Complications After Aortic Aneurysm Repair

Marfan Society (Marfan.org)
Losartan Shown to be Effective in the Treatment of Marfan Syndrome


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